About Me

I’m Michelle. Two and a half years ago I did a crazy thing, and began pioneering a new and rarely used treatment. I use an insulin pump to deliver cortisol, a hormone that sustains my life after losing my adrenal glands to malignant pheochromocytoma. At the time my doctors were unwilling to help me, so I had to step into the unknown with God’s guidance and the help of a few other brave pumpers.

The change has been incredible. No it doesn’t cure cancer, but it’s given me my fight back and I’m living a full life in spite of cancer and the damage it’s caused.

Since then, it’s become my mission to help others fight. To inform and empower patients like me. There ARE better days ahead and we will change the world one small step at a time. This is not just for ourselves, the people walking this path behind us will look at our lives and know– there is hope.

Read my story here- From Cancer to Adrenal Insufficiency: A Story of Bravery (Thanks to Angela at The Inspiration Edit)

Articles published on The Mighty:

When Doctors Get Excited About How Rare I am

How I Choose to Live the ‘Rare Life’

Help me bring Hope Education and Awareness to Rare Disease by following HEARD on Facebook!

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5 thoughts on “About Me

  1. Hello Michelle

    I hope this message finds you well.
    Thank you for the taking the time to help others to improve their quality of life with AI.
    My 6 year old daughter has been cortisol ‘pumping’ for nearly two years. It has been life changing for us both (although she is too small to recognise the impact of the changes to her quality of life).
    Now that we have settled into the pump protocol, I was wondering if you or any pumpers you know, get small lumps under the skin of their infusion sites? These lumps seem to take about three months to resolve.
    I look forward to any information you may have on this subject.

    Thanking you
    Tracey
    Australia

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    • Yes. Diabetics call these “pump bumps”, and while they don’t happen with every infusion site, they aren’t uncommon. As long as there is no sign of infection at the site (redness, swelling, itching, pain, hot to the touch) then pump bumps aren’t anything to be worried about. Just an annoyance that comes with pumping.

      I am excited to hear that your daughter is doing well on the pump. She’s the youngest cortisol pumper I’ve heard of!

      If you’re on Facebook, we have a cortisol pumper’s support group, aptly named “Cortisol Pump Group” it’s a great place to ask questions and share experiences!

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      • Thanks for the speedy reply and Facebook group, Michelle.
        As soon as I read about Professor Hindmarsh’s cortisol pump ‘replicating’ the circadian rhythm, I knew I wanted this for my daughter. The pump has made both our lives as close to ‘normal’ as possible and dramatically reduced hospital admissions and quality of life issues.
        The effort to obtain the pump, the ten minutes of ‘changing sites’ every three days and the extra cost, is so very worth it!!

        Like

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